Who We Are
We are a small group of dedicated volunteers. We are impacted by the condition or have family members impacted by FSH. We are determined to find a treatment or cure for FSH muscular dystrophy.
Founded in 2004, we have since supported FSH research in the United States and elsewhere with the advice of our Scientific Advisory Board.
We hold one annual fund raising event. The proceeds from our one gala (every January) goes toward funding new and continuing FSH research projects and supporting the FSH Clinical Network for future drug trials.
What We Do
Disabilities: We work to raise funds to stimulate and support FSH muscular dystrophy research. Our mission is to find an treatment or cure for this progressively debilitating condition.
Details
| (425) 827-8954 | |
| (425) 576-9245 | |
| terry@fshfriends.org | |
| Terry Colella | |
| President | |
| https://www.fshfriends.org/about/our-mission |
